Flat Pepsi

I’ve just ridden my bike all the way to Costco for a fountain coke.

But it’s Pepsi.

And it’s flat.

Oh, well. I did get some very cute boots for Me Too and a pack of readers for Me First. And slightly flat diet Pepsi is still better than coke from a pet bottle, so it’s not a total bust.

Me Too had an asthmatastic evening last night. It responded to the patch medicine, so we were only up until about midnight, but still.

Another trip to the doctor, another day late to school, another day of sitting through PE while the other kids laugh and play.

For her, it’s just reality. It’s all she’s ever known, and she doesn’t complain.

I’m driven to drink the hardcore stuff like flat Diet Pepsi.

I know it’s not that big a deal. Lots of kids outgrow it. Lots of kids around the world are sick and dying, and my problems by comparison are infinitesimal drops in the sea of misery that is humankind and I shouldn’t complain.

But I’m feeling a bit sad and blue and tense with anxiety about how our little girl is going to function at elementary school next year if she is constantly late or absent.

Gee, more caffeine is probably just what I need right now.

And these boots are totally cute. If she doesn’t want them, I’ll cut off my toes and wear them myself!

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10 Comments (+add yours?)

  1. Coco
    Sep 18, 2013 @ 12:13:12

    Have you ever taken her to the asthma specialists at the Red Cross hospital? It just seems like you could use some different/new ideas for care. We have A on the puffers now after a scary trip to emerg when she couldn’t breathe and oxygen levels were very low. Total turn around physically, after extensive exploration of her triggers. Sleeps like a baby. Volunteers for any activity because she knows her body can handle it. It has been very eye opening not to mention a huge relief. We are grateful to the school nurse for insisting that the asthma could be better managed. From what I know about Me Too, I feel like you could at least use a second medical opinion.

    Reply

    • hamakkomommy
      Sep 18, 2013 @ 14:05:30

      I agree about the second opinion. The problem is HRH. He doesn’t want her taking medicine every day, and he doesn’t want to offend our regular pediatrician by going to someone else. But I don’t see how she can succeed in school if it goes on like this.

      Which Red Cross hospital are you thinking of? Will look into that.

      Went to the coffee shop this afternoon, and thought of all the nice mornings we spent there with you guys! No chance convincing you to move back, I suppose?

      Reply

      • Coco
        Sep 19, 2013 @ 06:00:42

        みなと赤十字病院 is the one. I’m almost certain the ward newsletter or some other community bulletin told us about special appointments for people concerned about asthma symptoms. Whether or not that’s still going on, they were very knowledgable about current assessment and treatment. You’ll know how to spin it best with HRH, but from all I know of him, medical expertise is not something he can profess professional knowledge of… So I’d be inclined to take a doctor’s recommendation about daily medication. We were (I was ) hesitant too about daily meds but trip to emerg and potential low oxygen levels to the brain gave me a wake up. Llike I said, complete turn around physically and psychologically when following the expert’s advice. Poor health was holding her back from reaching her potential. You don’t want that for Me Too.

      • hamakkomommy
        Sep 19, 2013 @ 11:25:32

        Have just checked it now. Looks like a great place, but it’s the same thing about the letter of referral. So frustrating! Wonder if they’ll take one from America….

      • Coco
        Sep 20, 2013 @ 02:22:50

        Bite the bullet and ask the pediatrician! Also, I’m not clear on whether it is him as well or just HRH who is against a puffer (sounds like Singulair type stuff daily wouldn’t be strong enough). So if you can work with him all the better, but I’d still pursue the specialists too. noattacks.org is a resource you might find useful.

      • hamakkomommy
        Sep 20, 2013 @ 09:47:48

        She has a puffer now for emergency use, and has been on Singulaire off and on in the past (but it didn’t help much, maybe because she wasn’t taking it long enough.) Like you said, the hurdle we need to get past is taking these drugs for prevention, not to deal with an episode that has already started. And that seems to be a problem with Japanese medicine in general. I can get a referral letter (in English) easily enough when we go back next week. Will see if that is enough to get us in the door, at least. If not will have to work on Dr T or maybe stage a sit-in!

  2. chrysanthemummum
    Sep 18, 2013 @ 19:22:09

    Jeez, some Japanese men are unbelievable. I can’t see how offending a doctor, who hasn’t been successful at relieving your daughter’s suffering, is more important than your daughter’s health. I’d get that second opinion without your husband’s knowledge.

    Reply

    • hamakkomommy
      Sep 18, 2013 @ 19:50:46

      There’s more background info the other commenter is aware of, so HRH isn’t quite as bad as I’ve made him sound in the comment (I think.) We’d still have to go to the other ped for vaccinations and non-asthma related sickness. Me First would still go to that doctor for everything, so “going over his head” could be potentially uncomfortable for everyone.

      I can (hopefully) talk to my brother next week and see what the standard treatments are in the US and go back armed with that info

      Reply

  3. Susie
    Sep 19, 2013 @ 00:10:39

    I swear by Advair… I don’t know if you have that available in Japan or for young children, it’s really costly here in the states if you don’t have health insurance though (or welfare). There is no generic for it either.

    Reply

  4. Amy
    Sep 19, 2013 @ 11:51:37

    Hamakkomommy-san,
    If I may, I would really like to encourage you and your husband to find treatment for your little girl’s asthma. I didn’t know what it felt like to have weak lungs until I had pneumonia as an adult and was prescribed an inhaler to help breathing. Perhaps you already know, and I don’t intend to scare you, but the only thing that I can compare the feeling of having weak lungs is to drowning. The type where you’re able to get gulps of air along with water, and then you’re under the water again. The inhaler helps in being able to stay above the water like a floating-ring, so to say, and continue breathing until you’re safe ashore. I know it’s not good to take meds regularly, but it’s so hard for your body to naturally get stronger without being able to, simply, breathe. Once your lungs gets strong enough, then the dosage of taking the inhaler naturally reduces. Yay! Not getting treatment is essentially delaying your body of healing and getting stronger.

    I understand it’s a balancing act to maintain the tateme in Japan, but I hope you’ll be able to get treatment for your little girl. Would being upfront with your current doctor in your desire to visit the Red Cross be an option? Might be awkward in the beginning but maybe everyone will eventually get over it?

    I don’t intend to be preachy or anything, so I apologize if I’m not able to adequately express myself as just being sympathetic and delurking to share my experiences in having weak lungs. Good luck!!! Good Luck!!! Good Luck!!!

    Reply

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